Confidentiality Regulations in Research

Consult these sources for information and guidance concerning measures required to maintain confidentiality in research projects.

• NAACCR's Annotated Bibliography on Confidentiality Protection in Data Release - includes reports, articles, and books that may be useful to those in need of information on confidentiality protection of cancer data released by central cancer registries.
• Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data - this book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards. May be read online for free.
• NCHS Staff Manual on Confidentiality [PDF - 342 KB] - states the National Center for Health Statistics' policies that implement Federal confidentiality law and ensure that all confidential information will be fully protected.
• Census Bureau information on disclosure avoidance and differential privacy -
  • A presentation on disclosure avoidance and differential privacy.
  • A video “Protecting Privacy with MATH” that describes how differential privacy works.