Confidentiality Regulations in Research
Consult these sources for information and guidance concerning measures required to maintain confidentiality in research projects.
- NAACCR's Annotated Bibliography on Confidentiality Protection in Data Release - includes abstracts and reviews of source documents that may be useful to those in need of information on confidentiality protection of cancer data released by central cancer registries.
- Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data - this book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards. May be read online for free.
- NCHS Staff Manual on Confidentiality [PDF - 342 KB] - states the National Center for Health Statistics' policies that implement Federal confidentiality law and ensure that all confidential information will be fully protected.
- Privacy, Security and Data Exchange Committee - a national non-profit member-based partnership of federal, state and local health agencies; national and local professional associations; and public and private sector organizations and individuals.